Listening to: Radioactive (cover)- Kaito Vocaloid
Reading: Day of Atonement by Faye Kellerman
Watching: Fugoh Keiji Deluxe
Eating: crackers, cheese, strawberries
Drinking: pumpkin spice tea
Well, for the last 3 or 4 months I've been struggling with some form of IBD. IBD is Inflammatory Bowel Disease. Everything except one test points to Crohn's Disease. That one specific test recently was indicative of Ulcerative Colitis. So, now we're not sure which one. I know the least about UC. Just the idea of me having an actual 'disease' disturbs me. Not sure what the future will really hold. If the disease gets out of hand, they may have to take out my colon. But, that's if it got really bad. It's nowhere near that, but it still scares me. I'm apparently not absorbing enough protein, and my hair is falling out mainly because of it. Yay! My gastroenterologist said to increase my protein intake, but I'm not exactly sure how to do it...She said once my protein levels become normal again, my hair should be coming back in. It's not bad right now. Just looks thinner. And, she said with each result on that since the first one they looked at (when I was at my worst), I am improving on my protein levels really slowly. So, there's progress. Just incredibly slow feeling progress... Losing quite a bit of weight too, which she told me to keep monitoring it closely. If I suddenly lose a lot, I have to notify her immediately. I have to get a blood draw once a month now. But, eventually it'll only be every 3 months.
The newest med I'm on is actually an immunosuppressant, so I have to watch out for sick people, hospitals, cuts, etc. Also, it's a very mild chemo med. It's used for transplant and leukemia patients as well. That part scares me, too. Sometimes people have hair loss while on it, but it does start to grow back once the med gets used to the person's body. I get very sleepy right after I take it. But, that only lasts for about an hour or so.
Also, I started taking an anti-inflammatory med right after my colonoscopy. 9 of those huge pills a day. The pills have a thick plastic coating, and the med itself are little balls on the inside. They told me to have 3 of them 3 times a day. I've felt like I'm eating a wad of plastic every time. Very filling. (I have to take them with food. So, I'm even more full than usual after a meal.) Apparently, once I hit the 1-month mark with the newer med, I can go down to 6 of these pills a day. Eventually, I'll stop taking it.
Oh, and food doesn't make the disease 'flare up' or become active. But, it might affect the side effects. I'm trying to eat more easily digestible foods, too. Not totally changing my diet, but it's just to give my gut a break occasionally. Apparently, if you drastically change your diet while you have this, it does a lot more harm than good. I had a few friends on facebook suggesting I try all sorts of diets. Things like gluten-free, vegan, Atkins, paleo, etc. Almost felt like punching the screen... For some people avoiding certain foods won't do a thing to ease symptoms.
I finally came up with a title for my nightmare anthology, and it might take me a little while to get used to it. (Took me forever to decide on one...) I put all 12 of the short stories together in one document, as well. It was interesting to see how long the whole thing would end up being. It's 113 pages in Word. I've been told if it was a hard copy regular printed book, it'd be twice as much. It's not too bad considering it's 12 stories. I wanted them all to be short, but sometimes I thought a couple of them were a touch too long. But, this is good, better than I expected. Now I have to reformat it to the way Smashwords wants it, do the 'extras' (like About the Author, Contents, etc.), and figure out my cover art. Then, I can publish it. Wahoo! Seems like I'm getting close now. It's something positive for me right now. Also, hoping to get more into other stuff. Like, my drawing, doing more memes (they can be good for practice), etc. Been hard to do much of that while I've felt so horrendous.